Researchers from Laboratory for the Scientific Study of Dance (LAB:SYNC) at Northeastern University’s Center for Cognitive & Brain Health are conducting a new research study in collaboration with Dance for PD® of Mark Morris Dance Group titled “Dance and Energy Expenditure among adults with Parkinson’s” funded by the National Institutes of Health.

We are looking for adults currently participating in dance classes that have been specifically designed for adults living with Parkinson’s, and care partners, to join our research study.

To participate in the study, you must be:

– currently taking dance classes in the Boston metropolitan area that have been specifically designed for adults living with Parkinson’s OR currently taking online Dance for PD® classes through the flagship Mark Morris Dance Group program while residing in the United States
– an adult with a diagnosis of Parkinson’s or a care partner

Participants will be compensated for their time.

For more information or to complete the eligibility questionnaire, please click here.

To contact the research team, please click here.

¿Está interesado en aprender si tiene una forma genética de la enfermedad de Parkinson?

Qué
Realice un examen genético con una muestra de saliva o sangre.

Dónde
Instituto de Neurologia de Columbia, 710 West 168th Street New York, NY 10032

Cuando
¡Nos adaptaremos a su horario!

Para obtener más información, llame a Amy Arroyo (347) 470-7459 o envíe un correo electrónico a mdresearch@cumc.columbia.edu.

For research studying speech, social connectedness, physical activity, and cardiovascular health in women with Parkinson’s disease.

What
A single testing session for voice recordings, questionnaires and a neck ultrasound measure

Where
In person at Teachers College, Columbia University

When
We will adapt to your schedule!

Participants will be paid for completing the assessments and we will help with transportation costs.

For eligibility and more information, please click here.

Are you interested in improving your swallowing and cough function? If yes, you may be eligible to participate in a research study!

Who
Adults with Parkinson’s disease who have swallowing and cough difficulties
Ages 50 to 90

What
You will receive free evaluations and treatment of your cough and swallowing

Where
Laboratory for the Study of Upper Airway Dysfunction
Teachers College, Columbia University
525 West 120th Street, New York, NY 10027

Time Commitment
At least 5 in-person evaluations and 16 treatment visits over 15 months. Visits will be between 60-90 minutes. Receive pu to $200 for your participation.

Contact information
Email: uadlab@tc.columbia.edu
Phone 212-678-3072

PERSEVERE is a national study funded by the National Institutes of Health, led by Dr. Jori Fleisher at Rush University Medical Center in Chicago, IL, which is testing an educational program for family caregivers of people with Parkinson’s Disease with cognitive impairment, Parkinson’s Disease Dementia, Dementia with Lewy Bodies, or Lewy Body Dementia. PERSEVERE will test whether a disease-specific, caregiver-centered educational intervention improves caregiver knowledge, confidence, strain, and health outcomes – and whether it helps people living with Parkinson’s Disease Dementia, Dementia with Lewy Bodies, or Lewy Body Dementia, too.

Family caregivers will receive weekly educational guidance through a 12-week curriculum with resources and activities.

All participation is virtual and scheduled when it works for you.

There are no in-person visits and the person with Parkinson’s Disease, Dementia with Lewy Bodies, or Lewy Body Dementia does not participate–just caregivers.

Caregivers fill out online surveys and assessments at baseline and every two weeks throughout their involvement in the study, including a six-month follow-up period after the 12-week curriculum.

Interested? Click here to learn more.

Are you taking care of a family member with Parkinson’s? ​

We are seeking family members of people with Parkinson’s disease to share their experience providing care and seeking diagnosis and treatment. To be eligible, the care partner or the family member must be of Asian descent.

For Survey Eligibility:
– Care partner must be 18 years old or older.
Either the family care partner or the family member with PD must be of Asian descent*. ​
– Survey responses will be kept anonymous and confidential. The survey is completely voluntary.
– ​We request 1 care partner per family to complete the survey.

If eligible, the participant will:
​- Complete an online survey that takes approximately 45 minutes.
– The survey is available in English, Vietnamese, and Traditional and Simplified Chinese.
– After completion, receive a $25 Amazon e-gift card to thank them for their time.

* By anyone of Asian descent, we seek anyone with self-identified as Asian Americans.

* By family care partner, we seek anyone who provides care as a spouse, child, sibling, parent, grandchild, niece/nephew, or cousin for a family member with Parkinson’s disease.

Please click here for more information and to enroll.

Russell Sage College is conducting a research study on the Development and Evaluation of a Symptom Management Resource for Young Onset Parkinson’s Disease. The objective of this study is to determine if a symptom management resource including occupational therapy strategies is beneficial for individuals with young-onset Parkinson’s disease.

As an individual with young-onset Parkinson’s disease, we ask that you participate in the following ways:

1. Use the symptom management resource provided.

2. Complete a post-survey to help us determine if the symptom management resource is relevant, feasible, and effective for individuals with young-onset Parkinson’s disease.

Each survey should take you approximately 5 minutes. This survey is anonymous, and pre and post surveys will be coded to link surveys for analysis purposes. Your participation in this survey is greatly appreciated. Your feedback provides insight into the utilization of a symptom management resource for young-onset Parkinson’s disease. The benefit may not be directly to you, but will assist us to expand the resources available to individuals with young-onset Parkinson’s disease. Please note you may end your participation in this survey/study at any time.

Please click here to take the survey.

The University of Washington SPEAC Lab is inviting individuals who have Parkinson’s to answer survey questions about their communication experiences. Participants are welcome to nominate their family members, friends, or co-workers to also answer survey questions. Your participation will help healthcare providers support people with Parkinson’s and the important people in their lives to stay connected through communication.

This is an online survey study that will take about 30-45 minutes; paper surveys are available upon request. This study is open to eligible participants living in the U.S. Each participant will be mailed a $25 check from the University of Washington upon survey completion. (Your family / friends will also receive their $25!)

Click here to participate. The person with Parkinson’s needs to start first and then nominate others in the survey. Click here (http://sites.uw.edu/speaclab/) for more information or contact speaclab@uw.edu with questions.

PhD student Paula Abola is conducting a study on the knowledge of and attitude toward existing and emerging pharmacological and non-pharmacological treatments for Parkinson’s Disease across different geographical locations. This study received Institutional Review Board approval from the University of Jamestown. The study involves a survey that will take approximately 10-15 minutes and is aimed at people living with Parkinson’s and practitioners who treat or care for people with Parkinson’s.

Please click here to complete the survey. For questions, please contact Paula at pabola@jacobs-alumni.de.